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Oona_Luna
May 28, 2024, 3:08 pm to Public
TW: Sad

The wound in me speaks:
.
.
There was never a time I didn't experience violence for being "different", and being shut out of EVERY SINGLE COMMUNITY OF EVERY INTERSECTIONAL IDENTITY that is part of me. I have no queer ancestors , or trans ancestors that I can respect, because no one respects my disabled and sick body, my agency, or sees me as a person. My ancestors are the animals. I am an animal. The ancestors I long to not have been broken away from, were seen as animals by the original colonizers of this continent. I'm reclaiming the term animal--- because it's more than a term, it is a biological fact. Every part of me and every conscious and unconscious expression of those parts is imprinted onto my DNA.
.
This is the only time I will ever be alive. There is no afterlife, no meeting the ancestors. They too are gone. The only "afterlife" they have, is in my genetic zentangle. It's only now. My past is a past life, and I've died thousands of times, and been born thousands more--- and it's only been 41 years.
.
I been Largely alone in this world.
I consciously gave birth to my family so I'd no longer be alone--truly a Creator god. I am my own god, other than me, no god exists in my life. The children are gods, and I listen to all of their fresh wisdom so that I may survive day to day.
.
When my death comes, it will be as it should be, no matter it's form. I will die in the metaphorical or literal jaws of a hungry Being. Whether that Being is another animal or whether their body's hunger is appeased by my blood, or their hungry Ego is satisfied. But, until that inescapable moment of bodily death, I will fight for my life, I will fight to survive, and I will run, and relocate as many times as I must. Be it me and the children, trying to survive a society and world of hungry Beings, that hunt for our Lives.
.
Pride month is a distraction for me. A distraction from a fact that is was a riot (so it is said), where trans folx were fighting for their rights to exist, and beating back predators with all their might and Being. That is what the stonewall riot means to me. It isn't Pride, it's remembrance.

Remember stonewall... and we each have walls to climb then destroy..
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Oona_Luna
May 16, 2024, 12:45 pm to Public
If my life means anything, please let it be a warning cry--- to all of you who could be in my place. None of you are safe. I promise you this.People need to band together. We need to protect our rights, protect each other, protect our rights to safe shelter! Landlords are acting abusively, viciously, ruthlessly and with impunity because the systems of legal aid are overwhelmed and lawyers cost a premium.

Promise me, PLEASE PROMISE ME you will fight for your neighbors. Draw them close, love them how you are able. We each are precious.

We're alive,
we're here,
we haven't disappeared!

We are not numbers!
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Panda Gocarts3 replied to Oona_Luna's comment below 2024-05-16 23:53:00

oh, oh wow, I really do hope that goes well!

Oona_Luna replied to PsioPsia001's comment below 2024-05-16 17:59:42

The situation with a "housing crisis". So many disabled people are getting displaced from housing and barely anything is being done to help them. Many perish on the streets while waiting for shelter. The shelters aren't even wheelchair accessible. This is in the US, in case if anyone needs clarification, though, I'm sure the UK is currently having big issues with housing. In America there's a fight between people with massive amounts of corrupt power and marginalized people who are resisting being oppressed and unalived.

Oona_Luna replied to Panda Gocarts3's comment below 2024-05-16 17:56:23

It's a horrible situation with the landlord. This person is absolutely terrible and is trying to evict me because I'm complaining about needing repairs and mold. The department of civil rights opened a case against him because they found evidence of discrimination against my disability. He is retaliating. I have no money for a lawyer because I'm on SSI, so I have to represent myself in eviction court.

Panda Gocarts3 said 2024-05-16 13:23:09

what are you talking about?

PsioPsia001 said 2024-05-16 13:04:10

what happened? /gen
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Oona_Luna
April 30, 2024, 9:09 am to Public
This past week, during a dinnertime discussion, the idea was brought up that we should try to keep a hive or two of honey bees. Of course, that sounds like an awesome idea for whenever we aren't stuck in an awful apartment. I do want to make sure that no one has a bee allergy.
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Oona_Luna
April 26, 2024, 8:35 pm to Public
Ok [US] folks.

So, the weather's getting nice and some of you might like frolicking in nature which is freakin wonderful y'all. But, I want you to know about wearing appropriate gear if you're gonna be galavanting through tall glasses, wooded areas, fields, etc, because---- TICKS! LYME DISEASE! aaaaaaand the fact that health insurance doesn't cover treatment of Lyme disease! Oy!

So, here is a resource just in case you find yourself in an unfortunate situation and you believe you been nabbed by a tick:

Because the CDC states that Lyme disease can be treated with 30 days of antibiotics, the majority of insurance companies do not recognize chronic Lyme disease as a legitimate illness and will not pay for long-term treatment.

More information here:

www.gofundme.com/c/blog/pay-for-lyme-treatment#:~:text=Because%20the%20CDC%20states%20that,pay%20for%20long%2Dterm%20treatment.
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oliviobobby said 2024-04-27 10:18:56

<3
Oona_Luna
April 26, 2024, 8:28 pm to Public
From my pal Kit Muse (listen up peeps):

"If you haven't, I encourage you to look up MIT's Living Wage Calculator. See what it is. There's a good chance you're not making it, which you might have known. But you might not either.

livingwage.mit.edu/

Once I saw this a lot of things made a lot of sense about the stress I've been under for the past decade and why I feel as if I'm drowning... And why I am thoroughly pissed at the business owning class in my town. Educate yourself.

Keep this in mind, folks. Know your worth! 💪
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Oona_Luna
April 26, 2024, 6:24 pm to Public
My new life goal is to be like dog poop caked to the bottom of the deep-grooved sole of a hiking boot.

It will be darn near impossible to remove me .
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Oona_Luna shared Ender Sparkle's post
April 26, 2024, 4:49 pm with Public
I'm both a Twinkie slug and an orca cake

Ender Sparkle
April 25, 2024, 1:29 am to Public
Starting trends is my new hobby
I'm either/both Croissanatee and Marbled Orcake
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Oona_Luna shared Bubblez705's post
April 26, 2024, 4:47 pm with Public

Bubblez705
April 25, 2024, 11:50 pm to Public
EVERYONE

WE NEED TO GET Bagel TO 100 SUBS

SHARE THIS TO SPREAD THE cream cheese WORD🥯
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Oona_Luna
April 26, 2024, 3:41 pm to Public
Please excuse my scared, burnt out, trauma hole wall post.

Here's the trigger warning: housing crisis, disability, discrimination

I need some solidarity and caring, if anyone has any to give 💔

So, I'll get to it,

I'm at risk of being unhoused through no fault of my own.

It's because I'm disabled and trans.

Read on:

How a Disabled tenant on section 8 can be pushed out of a rental unit by a discriminatory landlord

So, the landlord has this tactic to push us out. It might be illegal, however, no one is going to penalize him.

So, first, understand that the unit I'm renting has the section 8 mainstream voucher contracted with it. Meaning, if the landlord breaks his section 8 contract (one way is by not filling out his portion of the recertification paperwork), then section 8 will stop payments for the month he did not return the paperwork, meaning, that the tenant will not have that portion covered, meaning the tenant will have to pay 100% all the rent due for that month.

Next, if the tenant has no extra funds or ability to cover the amount section 8 is withholding from the landlord, they are still expected to pay that, thus, the tenant MUST pay the rent in full for that month, if not, it is considered unpaid rent.

If the tenant can pay it, nothing adverse happens to either party.

So, what happens in that case, is that the landlord keeps refusing to return the section 8 paperwork for 6 months, thus, causing that unit to lose the section 8 status, AND *drumroll*

The tenant MUST move to another section 8 unit with a different landlord....OR ELSE... The tenant will lose their section 8 voucher altogether.

I have reason to believe that the landlord is not signing the section 8 paperwork for this month in retaliation for the department of civil rights opening a discrimination case (and possible investigation) on him on our behalf.

Apparently I can't live here and seek justice at the same time.

Ta-dah!
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ajthepeach replied to Oona_Luna's comment below 2024-04-26 18:33:37

LETS GO <33

Oona_Luna replied to ajthepeach's comment below 2024-04-26 18:27:05

I appreciate the kinds words and solidarity. Thank you.🙏💜 I plan to fight this right till the end, cuz I have children who need me to stay strong. In a couple weeks I hope to have a retainer fee for a civil rights lawyer. 🤞

ajthepeach said 2024-04-26 17:39:35

theres nothing i can do about this but pray and keep u in my thoughts, i hope it gets better

im so sorry stuff like this happens and it sucks, but keep fighting <3

oliviobobby replied to Oona_Luna's comment below 2024-04-26 16:23:22

anytime

Oona_Luna replied to oliviobobby's comment below 2024-04-26 16:21:48

Thank you for empathizing. 💜
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Oona_Luna
April 26, 2024, 9:45 am to Public
One of the most important skills for people to learn is literacy-- reading, comprehension and vocabulary, as well as critical thinking skills. Pair a lack of reading proficiency with misinformation and propaganda, and we've got a disastrous cocktail.

www.tiktok.com/t/ZTLu9sVKH/
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Oona_Luna shared MOLTENONI's post
April 24, 2024, 10:27 am with Public
I love this topic (among many others) because it is a rich starting point to discuss the connection between lack of creative output and its association with fascism. It may seem that AI generative art is a new frontier, but in reality, in practice , it is already walking along a well-worn path. The technology is different, but we have been here, we have seen this before (and not too, too long ago--- just ask your great grandparents from Eastern Europe). Here is an excerpt, and a link to the full article:

"Adolf Hitler was, like Bühler, a self-taught artist. He was also, according to a psychologist who examined him in 1923, “a morbid psychopath … prone to hysteria”. After failing the entrance exam for the Academy of Fine Arts in Vienna, he had scraped a living by copying tourist postcards in watercolours. When war broke out in 1914, he took his brushes and paints to the front, and when he moved into politics after the war, he took his art with him.Art helped him create a Nazi aesthetic, in the party emblems, badges and uniforms he designed, the stage sets he oversaw and the propaganda he sponsored. Art also gave Hitler a higher political purpose. Wars came and went, he liked to say, but in millennia to come the Germans would be judged on their cultural achievements, just as the great civilizations of the past were judged on theirs. To restore German culture was to restore the “ethnically pure” German Volk; to see it decline was to witness the Volk’s decline. And the insane direction contemporary art was taking marked, for him, a decline of epic proportions".

www.google.com/amp/s/amp.theguardian.com/books/2021/aug/08/how-the-art-of-the-insane-inspired-the-surrealists-and-was-twisted-by-the-nazis

MOLTENONI
April 23, 2024, 7:28 am to Public
i just realized i had made a typo in that one post i made talking about ai generative stuff lol

what i meant to say is like, *i just know they don't know what theyre talking about
like, ai defenders don't know what theyre talking about like... 90-95% of the time

fr you'll see someone going like "WELL referencing is stealing too, no? 😏😏😏"
like, dude, i'm actually putting some thought into LEARNING here. i'm not mashing words on software that is built on AND ENCOURAGES ITS USERS into taking other people's art WITHOUT THEIR PERMISSION AND WITHOUT OFFERING THEM ANY MANNER OF COMPENSATION and throwing it into an algorithm for a shitty excuse of a "tool" because those that use it want to play to be artists but can't be bothered to put some thought into learning how to use a pencil, or a mouse, or hell, even sand

*mic drop
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Oona_Luna
April 23, 2024, 8:47 pm to Public
I have always had "high needs". For this reason, the people who were able to mask would pick at me------ CONSTANTLY. And into adulthood, it's the same way. I keep telling people that there's this real nasty hierarchy of disability in the wider disability "community" and since I have so many "impairments" with smarts, and cognition, and body movement and impulses along with self harm, I get stuffed at the bottom and my "peers" don't take me seriously, or make fun of me, or just ignore me altogether and pretend I don't exist.

Later in life my self esteem rebounded somehow, and I began to love myself. I still haven't learned how to push back on the bullies though. When a disabled person bullies another disabled person it's harder to deal with it and assert boundaries because I don't know if they are bully me because it's a limitation or not. And then someone once told me, that disabled people are still people and therefore are accountable for what they do to other people.
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Oona_Luna
April 23, 2024, 8:45 pm to Public
I remind myself nearly every day now
that tradition can also include what someone makes for themself, in their lifetime, a way of keeping going, ways of persisting, best ways of doing things, and wisdom from the seasons of one's life. I am not void of tradition! In fact, I have quite lots of tradition built up from my time on earth just living and doing what a human does.

I think it's extra special when I get to make art and music about what I love to do and what I do to stay healthy and happy. I record that, and share it with my loved ones
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Oona_Luna
April 23, 2024, 8:45 pm to Public
Birds are medicine, to me, the way I get to look at them and observe their lives day to day, and if I'm lucky, get to know individual birds. I often daydream, and wish to be adopted into their society 💓
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Oona_Luna
April 23, 2024, 8:42 pm to Public
Between autistics there seems to be a dominant voice in info-dumping with those who are college graduates vs those who didn't have access to college.

Oftentimes, the dominant, institution-credentialed info-dump can lack actual fact, but still silence the info-dump of the "non-educated" autistic.

There most certainly is bias against the "non-educated" autistic info-dump.

I did go to college for a time, but was priced out, as well as not accommodated, and the bias against me makes me nauseous. I know how to research, and there are things I just know because I have lived experience with the particular thing. Despite that, the college degreed autistic knows more about my lived experience than I do, even though they got a lot of the facts wrong when they challenged me to a "dual of wits".

All this crap is exhausting.

Autistics have to prove themselves to autistics all the time.

Hierarchy in Neurodivergence.

Also, a side note:
The Actually Autistic hashtag has always rubbed me the wrong way because it feels like it comes from the same ven diagram of the problem I described above

Side note to the side note:

You'll often see me refer to myself as an animal first and foremost, which precedes any gender or disability status.

Animals don't have time for this sheet
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Oona_Luna shared Tzyber's post
April 5, 2024, 3:21 pm with Public
More!

Tzyber
April 5, 2024, 1:20 pm to Public
requested by squarepirate
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Oona_Luna shared Tzyber's post
April 5, 2024, 8:46 am with Public
Portrait art is timeless. I love this!

Tzyber
April 4, 2024, 10:43 pm to Public
some fanart for legendary si

who wants next
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Oona_Luna
March 31, 2024, 5:08 pm to Public
Here's a video of our hamster, Ginger Snap washing his face

https://neurodifferent.me/@ShinyAmygdala/112191426302107418
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oliviobobby said 2024-03-31 17:33:51

:3
Oona_Luna
March 6, 2024, 10:59 am to Public
Wew. I got home at about 10:30 last night. I did hire a really nice, COVID- conscious person from synagogue to sit with the youngest child, and I prepared all the snacks and meals ahead of time in cute restaurant take out boxes so everyone would feel like they had restaurant food while I was gone. I premade the kids' comfort foods. They ended up being without me for 11 hrs yesterday! When I got home and prepped for bed, we cuddled and watched funny YouTube videos.

The surgery itself, holy crap! The surgeon is amazing, but, the after effects were rough. The initial pain after coming out of anesthesia felt like being stabbed in the abdomen with a screwdriver. There's only 4 small incisions which they sealed on the outside with this sort of sticky, self- deteriorating adhesive that falls off on its own after a week.

The surgeon found multiple hernias. There's an actual term for it : "swiss cheese" hernias! He stitched all those up too.

Coming out of anesthesia was really rough. I had an extended stay in recovery because I couldn't get up without passing out. I have Postural Orthostatic Tachycardia Syndrome (PoTS) so I bet it was flaring really bad with all the meds I was put on.

One of the nurses was really ableist and mean (I do understand they are stressed but they don't have to be transphobic or ableist), and was weird about my urinary device I brought to use at the hospital. Trans people in emergency situations are in triple danger, when they are also disabled.

The surgeon himself knows who and what I am and is totally cool with all of it--- Dr. Obinwaane. This is the second time he operated on me, and I'll for sure be going back for my other surgeries in the future.

Today I need help showering, because I was told not to shower when I got home. I just wiped down my exposed appendages to get the hospital germs off (hospitals are full of germs like MRSA and viruses).

I do want to say that I'm nervous as hell about COVID. I brought and wore an n95 but when I was unconscious I didn't have it on and NO ONE there was wearing a mask!

I do have an updated vaccine so I'm hoping I don't catch it. My abdomen hurts so bad I can't imagine having a COVID cough that would cause my abdomen to tense around the mesh and stitches.

Thank you everyone for your well wishes. I thought about them whenever I was scared. 💜😭
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Papa Enny said 2024-03-06 11:07:02

Wholesome that your surgery went well. Keep recoverring
Oona_Luna
March 5, 2024, 9:05 am to Public
I have to be at the hospital by 12 noon, surgery starts at 2 and should take 2-3 hrs, then I will be moved to recovery for another 2-3 hrs, and THEN hopefully, I'll get to go home.

I've needed this hernia repair surgery for 6 years now. It's a robotic laparoscopic surgery, meaning, the surgeon will be doing this through a robotic arm. 6 small incisions to thread the camera and equipment through, means that it won't be an "open" surgery, and will take less time to heal. Mesh is being installed.

I just want to get this over with and move on with my life.

Please send me and my family healing thoughts. This is a very stressful time.
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oliviobobby said 2024-03-05 16:49:58

good luck mate <3

Papa Enny replied to Oona_Luna's comment below 2024-03-05 09:20:59

Woah, you have the hyperelastic skin one. 3%? It will be good :)
You went under worse, like laparoscopy, which is enough traumatic, so that one will be good.

Oona_Luna replied to Papa Enny's comment below 2024-03-05 09:18:53

Thank you for the well wishes.💜 I had to Google about your comment to learn more. I kinda wish I put this up on PMC sooner....lol

It looks like it's about a 3% risk though. I made sure the surgeon knew about my Elhers Danslos and all that. He also did an emergency surgery on me this past summer that went really really well.

I appreciate the info, so, I can keep an eye out.

I'll try and post an update when I can.

Papa Enny said 2024-03-05 09:09:17

Good luck, stay strong. Laparoscopy can led to hernias sadly, thankfully your surgery seems to be an inside one, thanks God. I hope you would recover quick and be able to sleep peacefully(your stomach will not "stretch")

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